Tasty Treats

My mom and I had decided to go to Dunkin’ Donuts as a treat to ourselves after a long day of errands. I’m nine, so this is the most amazing thing that could happen to me. We look at all of our options, and I’m feeling rabid for sugar. I can smell the sweet dough in the air and my stomach is screaming at me.

I turn and sign to my mom. “What do you want me to order?” I’m already used to being an interpreter for her and am fully aware that I am her voice in public.

“You choose anything you want for both of us.” She smiles at me, knowing that this is a dream come true.

Even though I’m young, I’m very conscious of the eyes on us as we sign to one another. I don’t mind much, but I don’t really understand why everyone feels the need to stare at two people communicating.

I walk up to the counter with my mom, eyeing the chocolate donuts. The man behind the counter looks at me with sad eyes and greets me.

“Hi honey, what can I get for you two?”

I tap my fingers on my chin, not really sure why I am, I just know that I’ve seen people in movies do it while they think.

“I would like the double chocolate donut and the chocolate donut with sprinkles, please and thank you!”

He grabs the donuts and hands them to us and my mom pays, while I examine my goodies.

“Don’t leave yet, give me one second.”

The man turns around and grabs another donut, while I translate what he said to my mom, both of us standing there, confused.

He hands us a chocolate glazed long john, which I add to my treasure.

“I’m sorry your mom can’t hear.”

“Okay, thank you!”

My mom and I walk out and she asks me what had just happened. I knew that this situation was weird, but I was too young to understand just how weird this was. Things like this happened fairly often, and it wasn’t until much later that I had understood that I was being pitied for my parents being disabled.

Superpowers

In my personal experience, I’ve always noticed that since my parents were deaf, it was always like their other senses were extremely heightened. I’ve briefly talked about this in another blog post, but they would smell my chocolate the second I opened the wrapper and know I was sneaking candy.

Even now, they both can smell things that I can’t at all. We do have to take the garbage out slightly more than I’d like to, because my parents can smell any garbage even with a scented bag and hiding the garbage can under the sink.

Besides having a super heightened sense of smell, they didn’t have many other superpowers, but they used that superpower extremely well. It was usually to catch me feeding my sugar addiction, but as parents it was the best superpower they could probably ask for.

CODA Habits

There are a lot of things that I’ve noticed I do because of the fact that I’m a CODA. They’re mostly just a bunch of random little habits that I’ve picked up over my 25 years of life and how it’s all influenced me.

One thing I do often is sign to myself. Instead of talking to myself, I’ll subtly sign or finger spell my thoughts or a song that’s on my mind. I’ve already mentioned this in an older blog, but I often finger spell words so that I can visualize how things are spelled. Even as I’m typing this, I actually caught myself signing my thoughts to myself instead of typing and deleting everything.

Another habit that I have because of being a CODA is that I visualize things different than most. What I mean by that is that when talking about a certain place, I’ll point in a direction that may not be the actual direction of where that place is. That’s because of sign language in general and how places are referred to. While signing, you don’t need to point in the exact direction of where you’re talking about, but instead you place it somewhere and visualize it in front of you. After placing it in front of yourself, that’s where it lives. This is fairly hard to explain in just a blog and it can be confusing to people who didn’t grow up like this. It’s actually something I only recently realized that I even do, because I’ll often point in a direction when talking to my boyfriend and every time I do that, he gets extremely confused because it’s not how hearing brains work.

Assistance

There are some things that are available to help deaf people with everyday life that many hearing people aren’t aware of. The first one that I wanted to bring up is closed captioning at movies. There’s actually a few options for closed captioning. The first one is that there is a device that shows subtitles for whoever is holding it. The other option is that many movie theaters have special showings of movies with subtitles on the screen.

Something else that I wanted to talk about is alarm clocks. Many people may wonder how alarm clocks work for deaf people since it’s not like they can hear the screaming beeps. What my parents have used is a little device that you put under your mattress and instead of beeping, it shakes the entire bed. We also used to have other things like flashing lights for the door bell or phone, and flashing lights for when I’d cry as a baby.

Interpreters

Interpreters have been a huge part of my life and after years of needing them for my parents, you start to become familiar with certain people. There were a few interpreters that essentially saw me grow up, since they always happened to be my parents interpreter for whatever event we needed them for. We usually would have my school hire an interpreter for things like plays or musicals that I was in.

However, interpreting has actually made its’ way into popular culture now, and it’s a really interesting thing for me to see. I grew up with people saying interpreters were almost too distracting and now, I personally feel like people seek out to watch them as an art form. I think a reason for that is the fact that there are young deaf people in the world and the culture has changed and grown.

An example of that is interpreting with music. I remember growing up and watching interpreters at concerts with my mom, and it was nothing like it is today. ASL wasn’t as popular as it is now and so the sign language was more direct and even though it was beautiful to watch, it wasn’t as passionate as I think it is now.

If you haven’t heard of her, I highly recommend looking up Amber Galloway-Gallego. I personally think that she is one of the main reasons that people are interested in sign language and why it has become such a big part of popular culture. She really is able to show so much emotion when she interprets and I think it’s amazing to watch. I feel like a new video of her interpreting will pop up on my Facebook every week.

It’s also different for me because rap and hip hop is popular now, and watching rap be interpreted is the funniest thing I’ve ever seen. Mostly because it’s something that requires a lot of body language and emotion and also, I know how hard it is. It’s hard to explain to people why this is so funny for me, but it’s just the most hilarious thing I can watch.

Getting Permission

So, as I’ve said many times before, growing up was very different for me. For example, my mom or dad couldn’t just pick up the phone and call me out sick from school. They would have to use the TTY and relay service that I mentioned in another blog post and call that way. Something that I contemplated many times was calling myself out of school since no one could truly prove that it was me and not my parents. I was always way too scared to do that though, so I was a mostly good kid and went to school.

One experience that I had difficulty with was when I was 17 and in the car with friends when we got into a pretty bad car accident. All my friends were able to call their parents and have them tell the paramedics that they didn’t need to go to the hospital since none of us were badly hurt. However, I couldn’t do that. I had to have my mom actually come to the accident, which luckily was only a mile away from my house. I’ve had a lot of experiences with things like that, where I have to do a lot of explaining that my mom can’t just get on the phone and give permission for something. I remember being really happy that we weren’t far away, and that my mom could easily drive the five minutes to me.

I’ve had a lot of experiences where I have to pose as my mom on the phone because the phone company or whoever I’m talking to for her won’t let me make decisions or changes for her, even though she’s deaf and can’t just get on the phone and authorize something. I definitely understand the reasoning, but at the same time, it can be a hassle. Although my parents being deaf has always been an easy way out of a telemarketer conversation. I would always answer the phone and when they asked for a parent, I’d say they were deaf and I would always get lots of apologies and a quick end to the conversation.

Going Deaf

Something I get asked often is how my parents became deaf and if I’m worried that my children could be deaf. Deafness happens in so many ways and I actually think it’s really interesting to hear everyone’s stories because they can be so unique.

With my mom, she had a fever of 106 at 4 months old, and that essentially melted her hearing away. However, doctors didn’t know she was deaf for quite some time. My grandma would take her to the doctor because she was concerned that her daughter wasn’t really reacting to noise. Every time she would go to the doctor, they would call my mom’s name and tap on the bed that she was on, thinking she was reacting to the sound, when really she was reacting to the movement. It took my grandma hiring specialists to finally realize that she was deaf.

My dad was born deaf and there wasn’t really ever an explanation that we knew of. We recently learned that his mom had a fever during her pregnancy and that caused stress on the pregnancy and he lost his hearing from that. The doctors didn’t predict that he would be deaf, but thought he might have learning disabilities.

Because of how my mom became deaf, I don’t have a super high chance of my children becoming deaf, but because of the advances in technology and because of my upbringing, I know that having deaf children won’t be a difficult thing for me to deal with.

Pranks

Growing up, my brother was a bit of a practical joker and loved scaring me. But not only did he prank me, but he often pranked my mom.

The most memorable prank is when I was about 16 or so. It was an early Saturday morning and I walked into the kitchen to get breakfast. In the room next to the kitchen, my mom was talking to a friend on her video phone. Suddenly, my brother came into the kitchen and yelled, “Get down and be quiet!” I’m not really sure why we needed to be quiet, but I was not quiet. I could not stop laughing as my brother army crawled across the dining room and under my mom’s chair. He got as far under her chair that he could and then grabbed her legs and scared the crap out of her. I still cry of laughter to this day. My mom didn’t find it as funny as we did.

We often would hide behind doors and scare her as she would walk into rooms, and normally I’m awful at pranks because I can’t help but giggle and I tend to shift around and just make a lot of noise. With a deaf mother, I can be as loud as I want as long as she isn’t wearing her hearing aid.

Sign Names

A question that a lot of people ask is “How do you figure out a sign for your name?” The answer is easy. You make it up. When you introduce yourself to someone new, you spell out your name and then let the person know what your sign name is.

I have a funny story with my name, since I didn’t make my original sign name. My parents decided that my nickname would be the letter T being shook back and forth. For people that don’t know sign language, this makes no sense. Well, that sign also means bathroom. My parents decided to nickname me bathroom. I’m still salty about it.

I’ve now changed my name to a T being squiggled down my face like hair, because I used to do a lot of fun things with my hair but now I’m too lazy so it doesn’t make as much sense. Sign names are fairly easy to make up and there really isn’t much to it. I’ve created names for friends of mine based on things that they enjoy. I have a friend that drinks a lot of beer, so we combined the sign for beer with the sign for S, which is the first letter of his name. So if you want a sign name, it’s really easy to come up with and it’s fun to get to have creativity with it.

Technology

I’ve talked about the TTY, but I wanted to touch on the influence of technology on deaf life. Again, this is just what I grew up around, so obviously not all deaf people may have this exact experience.

Growing up, my parents always had the newest technology before most people that I knew. I remember my parents having pagers to reach each other, but I also remember being way too young to understand what it really was.

The next communication device I remember them having was a T-mobile Sidekick and a Blackberry. I loved the Sidekick. I was that kid that was constantly taking my mom’s phone to play games. I was basically the epitome of “You got games?” This was also the era of flip phones, and I remember feeling extremely cool because my parents had cool and high tech phones and I could do so much on their phones.

My parents moved on to Iphones once they became even more popular, and technology has really helped and also hindered their lives. Once again, referencing one of my favorite comedians, Keith Wann, he mentions how talking has turned into just texting and ignoring real life. This is actually one of my favorite jokes and I share it often with people.